The word

A few days ago was the 5 year anniversary of the diagnosis. I wrote the following some time ago when remembering how things happened. By way of explanation, Acute Lymphatic Leukemia (ALL) is a very aggressive cancer. Time is of the essence when starting treatment. I knew this first hand. A friend that I met in the Philippines had this same diagnosis. It took her in a week. So I understood the immediacy of the situation.
R and I went out yesterday--had a date to celebrate the occasion. Just the two of us. :)
Here goes . . .

It was a conversation I knew would happen. You had told me what the plan was for the day. You had told me to come after work for the meeting with Doctor to discuss the strategy. I knew the outcome of the evening. I knew the word I was waiting to hear--dreading to hear. I passed through the day in a haze of numbness--thankful for a new job to distract me--seeking to avoid even the fifteen minute break. Fifteen minutes was time enough to emerge from the numbness into the pain.

I left your place of work, thinking the task of driving would be enough. But the miles of highway sameness offered no solace. I was a pendulum between numbness and pain those sixty miles. A soul between purgatory and hell.

"There you are!" you called out cheerfully when I entered the room. You were flanked on either side by Doctor and Nurse. You three had already started the conversation, but would review for my benefit. Doctor began at the top, explaining diagnosis, disease and options. I listened quietly, nodding attentively. I was waiting to hear the word. I knew it would be spoken before the end of this meeting. Would I have the strength to bear it?

Into my head came an image of our children. I saw them as clear as if they were standing there by your bed. Our children. Our little boy and little girl. Images of them came to mind--after they were born. First was our son, then within two years our daughter. We had them close in age so they would be companions as well as siblings.

You and I had made a similar arrangement as my parents had, so I named our son, then you named our daughter. I saw our blond, blue-eyed children as infants. I thought about how we would gaze at them in amazement and pick out familiar features. We would even see our parents' and siblings' features in our children's eyes and noses and chins and hands.

Our little boy was the picture of you in your youth. He would follow you around--Daddy's little helper. He would always insist on accompanying you to the garage. You were stern but gentle with him. You would take the time to show him things that he needed to know--how to wash and wax a car, how to fix a stereo, how to pet a cat properly.

Our little girl had you completely bewitched. She would wear her dress-up party costumes and invite you for tea parties. Even at your busiest, you would make a point to give her special attention, even if you couldn't sit down next to Mr. Bingles for crumpets and cookies.

You would shake your head in amazement to see an obvious feminine heart forming in our young daughter. And I would thrill to see the young man our son was developing into--already showing signs of those character traits which I so admire in you.

Doctor continued, broaching the subject of a medical study, that you were a prime candidate, that it was entirely up to us . . .

My mind went to my parents, the proud grandparents of our children. We had wracked our brains for weeks to think of the perfect way to bring them the news of their first expected grandchild. How my mom had cried. My dad had embraced his new role with fervor, "horsey-rides" "airplane" and "hide and seek" despite his age. My mom worried and scolded him, but he didn't care. Now that our son was getting a little older, my dad would take him to every airshow he could, pointing out all the different planes. My mom would sit with our little girl and teach her to stitch and sew. "She's quite talented" my mom would beam proudly, inspecting her handiwork.

The word was in the wings, waiting for its inevitable entrance into the conversation, into our lives. I sensed it was near. I glanced at you, wondering if you felt its presence. You were listening to Doctor. He had begun.

He was reading from a list. Page upon page of poisons. Tools they would use to fight this enemy which had invaded us.

The laughter of our children echoed in my mind as the side effects were lined up and ticked off. A whole new list for each poison. I waited and listened . . .

"...nausea . . . diarrhea . . .rash . . . anemia . . . blurred vision . . . dizziness . . . headaches . . . cramping . . . bleeding . . . hair loss . . . blindness . . . "

Then suddenly it was there. The word. Spoken. Hanging in the air. Filling the room. Mingling with our children's laughter.

Doctor didn't stop reading until you reached over and took my hand--the closest you could get to comfort me. Nurse sprang into action, trying to find a tissue for me. Are there no tissues in this room for this weeping woman? Doctor looked at me, surprised. I had been taking it all so well, until the word was spoken.

"Do you two have children?"

I looked at you through my tears.

You answered Doctor for me.

Doctor and Nurse both waited respectfully until I quieted. Doctor gently explained that there was no time to delay. No time. We must start the regimen tomorrow. I nodded. I knew we had waited too long.

Doctor continued with his list. No more surprises. The room was silent, except for Doctor's voice . . .

". . . seizures . . . loss of appetite . . . muscle spasms . . . blood in the urine . . . dementia . . . . . . "


Peace
C